Job Accomadation Network (JAN) | https://askjan.org/ | “JAN provides free consulting services for all employees, regardless of the medical condition.” |
Creative Healing for Youth Healing (CHYP) | https://mychyp.org/ | “CHYP is a nonprofit connecting youth in chronic pain and their caregivers with peers through creative healing experiences and collaboration.” |
Patient Advocate Foundation | https://www.patientadvocate.org/ | A resource for US based spoonies who need help with pre-authorizations and co-pays. |
Pain News Network | https://www.painnewsnetwork.org/ | "Pain News Network is an independent, nonprofit online news service providing in-depth coverage of chronic pain and pain management." |
The Patient Doctor Forum | https://www.thedoctorpatientforum.com/ | "To advocate, educate, and legislate on behalf of patients and their providers while equipping them with resources and tools to live quality-filled lives while also supporting the sanctity of the doctor/patient relationship." |
The Mighty | https://themighty.com/ | "The Mighty is a safe, supportive community for people facing health challenges and the people who care for them." |
The Spoonie Support Group | https://linktr.ee/spooniesupportnetwork | Full of links to spoonie support groups! |
Patients Rising Now! | https://patientsrisingnow.org/ | "Patients Rising Now is a national 501(c)4 nonprofit organization dedicated to advocating for the rights of patients with chronic and life-threatening illnesses." |
Thriving With Pain | https://www.facebook.com/thrivewithpain | "The page is focused on sharing our experiences of living with Chronic Pain, Lifelong Illness and the impact it has upon the person." |