Advocacy Websites

NameWebsiteDescription
Job Accomadation Network (JAN)https://askjan.org/“JAN provides free consulting services for all employees, regardless of the medical condition.”
Creative Healing for Youth Healing (CHYP)https://mychyp.org/“CHYP is a nonprofit connecting youth in chronic pain and their caregivers with peers through creative healing experiences and collaboration.”
Patient Advocate Foundationhttps://www.patientadvocate.org/A resource for US based spoonies who need help with pre-authorizations and co-pays.
Pain News Networkhttps://www.painnewsnetwork.org/"Pain News Network is an independent, nonprofit online news service providing in-depth coverage of chronic pain and pain management."
The Patient Doctor Forumhttps://www.thedoctorpatientforum.com/"To advocate, educate, and legislate on behalf of patients and their providers while equipping them with resources and tools to live quality-filled lives while also supporting the sanctity of the doctor/patient relationship."
The Mightyhttps://themighty.com/"The Mighty is a safe, supportive community for people facing health challenges and the people who care for them."
The Spoonie Support Grouphttps://linktr.ee/spooniesupportnetworkFull of links to spoonie support groups!
Patients Rising Now!https://patientsrisingnow.org/"Patients Rising Now is a national 501(c)4 nonprofit organization dedicated to advocating for the rights of patients with chronic and life-threatening illnesses."
Thriving With Painhttps://www.facebook.com/thrivewithpain"The page is focused on sharing our experiences of living with Chronic Pain, Lifelong Illness and the impact it has upon the person."