| Name | Website | Description |
|---|---|---|
| The Ehlers-Danlos Society | https://www.ehlers-danlos.com/ | "The Ehlers-Danlos Society is a global community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions." |